Welcome to Hypopara UK
Empowering, educating & supporting patients since 2005
We warmly welcome you to the UK & Ireland patient organisation for adults & children living with a parathyroid disorder. If you have any type of rare hypoparathyroidism, psuedohypoparathyroidism, caSR or the more common primary hyperparathyroidism we're here to help you to understand your condition and improve your quality of life. Read more about how we help here and join us here to access our support group. We look forward to meeting you.
Parathyroid transplantation - your views
The first ever study into hypopara patients' views on parathyroid transplantation is now published. Many thanks to Hypopara UK advisor and surgeon Radu Mihai and Alexander Stevenson, Oxford University, and to everyone who took part in the survey.
Read the study here
International survey on hypoparathyroidism.
THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society of Endocrinology annual conference, the ECE2018, in Barcelona in May.
Not seen the UK 'quality of life' survey results yet? See below...
Video on latest stem cell research
Watch the excellent video that consultant surgeon Sebastain Aspniall and his team at Newcastle University have made to explain parathyroid stem cell research and why it is needed.
21st November 2017
Shire 'quality of life' report out now
We are delighted to bring you the results of the 'Living with Chronic Hypoparathyroidism' survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from 'the impact the condition has on patients' ability to lead a normal life - to work, drive and socialise - to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.'