Welcome to Hypopara UK
Empowering, educating & supporting patients since 2005
We warmly welcome you to the UK & Ireland patient organisation for adults & children living with a parathyroid disorder. If you have any type of rare hypoparathyroidism, psuedohypoparathyroidism, caSR or the more common primary hyperparathyroidism we're here to help you to understand your condition and improve your quality of life. Read more about how we help here and join us here to access our support group. We look forward to meeting you.
It's nearly World Hypopara Day!
We're holding the annual facebook campaign in the World Hypopara Patient Group on June 1st. Last year, hypopara patients from 20 countries all joined in the fun and it was a very emotional day!
This year, as blue is the colour of our Awareness day logo, all you have to do is wear something blue (did we say clothes?!) and post your selfie.
Check out the World Awareness Day website to see how to get involved and to read about events around the world.
Buy your beautiful enamel World logo badge here (it's blue!)
Sandocal - temporarily out of stock
The manufacturers of Sandocal, Glaxo Smith Kline, say that there are currently 'availability issues ' with all Sandocal tablets and they will be out of stock until 10th May. They warn that it may take some weeks after that date until it is back in the chemists.
We recommend to switching to Ad Cal, a popular calcium supplement which is not effervescent and does not contain aspartame.
Ad Cal tablets: Each 1500mg chewable tablet contains:
1500mg calcium carbonate (equivalent to 600mg of elemental calcium).
Excipients: Xylitol, polydextrose, pre-gelatinised starch, sodium saccharin, magnesium stearate, fruit flavour (contains propylene glycol and maltodextrin).
Sandocal tablets: Each effervescent tablet of 1000 mg contains:
2263 mg of calcium lactate gluconate and 1750 mg of calcium carbonate (equivalent to 1000 mg of calcium).
Excipients: 3323mg of citric acid anhydrous (fine granulate), 30mg of aspartame (E 951), 500 mg of sodium hydrogen carbonate, 30 mg of Orange flavour powder (containing sorbitol (E 420) and dextrose).
International survey on hypoparathyroidism.
THANK YOU to the patients and carers who took part in the International survey on the Burden of Illness Among patients with hypoparathyroidism. The interim abstract and poster will be presented at the European Society of Endocrinology annual conference, the ECE2018, in Barcelona in May.
Not seen the UK 'quality of life' survey results yet? See below...
Video on latest stem cell research
Watch the excellent video that consultant surgeon Sebastain Aspniall and his team at Newcastle University have made to explain parathyroid stem cell research and why it is needed.
21st November 2017
Shire 'quality of life' report out now
We are delighted to bring you the results of the 'Living with Chronic Hypoparathyroidism' survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from 'the impact the condition has on patients' ability to lead a normal life - to work, drive and socialise - to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.'