Get Involved

Sponsor a fundraiser

Here are our latest fundraising events. Most of these wonderful people are patients themselves so please consider supporting their efforts.  

If you’d like to join in the fun yourself and raise money to help us continue our activities in research, awareness, education and support, you can set up your own fundrasing page and get started right now! Click here http://www.bmycharity.com/charities/hpthuk

To see other ways you can help us or get involved please click here


London Marathon April 28th 2019

Julie had Primary Hyperparathyroidism (PHPT) and had a parathyroidectomy in March 2018. A year later she is running the London Marathon 'for everyone affected by PHPT because I am grateful to be able to run.  I am raising awareness of the condition and also funds for Hypopara UK who have been a great source of support and to help them continue their campaigning and support work for people with these conditions.'

If you would like to sponsor her please follow this link to her fundraising page 





Sponsored Toddle

You’re never too young....the old adage is true! Meet our youngest volunteer ever,18 month old Rafael, in training for his 26 metre ‘toddle’ to raise money and awareness for Hypopara UK. Rafael's Mum has Hypopara.

You can support Rafael via his shareagift fundraising page 

Go Rafael, you’re a little star!!!


Going the distance....

To support his sister who has hypopara, Stephen Reid is taking part in the Polaroid Eyewear 10K Series! This is a series of four 10K road runs, taking place over four weeks in Helensburgh, Clydebank, Dumbarton and the Vale of Leven. What an achievement!

Help Stephen to help us all by donating on his shareagift fundraising page.











Ride London ballot open now!

Any keen cyclists out there looking for a new challenge? Ride London is a fantastic 100 mile ride through London and Surrey, finishing in The Mall, on August 2nd 2015. Register now and if you are lucky enough to get your own place in the event from the ballot ( you'll be informed in early 2015) we’d love to have you cycle for Hypopara UK! Anything you raise will make such a big difference to us as a small charity for a rare condition, and we will support you all the way. Please sign up now before the ballot closes - here!  




Rock Around the Midnight Clock

Bridget O'Connor was 60 on New Year's Day and threw a party! Not only did she ask all her guests to donate to Hypopara UK in lieu of presents but she had been having secret singing lessons and performed on the night! You can support Bridget's brave effort at our Bmycharity page here or JustGiving here



Bridget says: 'My reason for doing all this is to give something back after developing hypopara following surgery and having it for the rest of my life. Because the support I received from Hypopara UK was and still is so valuable , learning to be positive living with any chronic long term health condition  -  YOU ruling it and not letting IT rule you - and leaarning that even having go through throat/neck surgery there is a positive outcome.'



The first Hypopara UK Calendar

This is our very first Hypoparathyroidism UK Calendar. Every single penny from the sale of each calendar will enable us to continue providing a voice for people with parathyroid conditions. 

You can order your calendar now for the exceptional price of £6.00 plus postage and packing.

Please email your order and delivery details to su@hpth.org.uk and we will send you a PayPal money request. 

Calendar price : £6 each plus postage and packing as follows:-
UK: £1.50 
Europe: £3.50 
World Zone 1: £4.50
World Zone 2: £4.75

 Hurry while stocks last!


The calendar was conceived, designed and produced by Hypopara UK committee members Su Clifton & Mandy Mainland  - thank you both! 

Please note: due to a printer error that we unfortunately could not afford to rectify, St Andrew’s Day has been entered on the 29th November instead of the 30th


Salford Triathlon -  online donation page is still open

 Hypopara UK member Rob Healy completed the Salford Triathlon ( Olympic distance) on August 18th to 'give something back to Hypopara UK'. It's been an ardous training schedule battling his unstable calcium levels in and out of hospital so please support Rob's brilliant effort. 

Rob met his target of £1000 but the online fundraising page will be open for a few months more so you can still donate. Please click here  - or send a cheque . 


Cake & Cocktail sale

Hypopara UK member Isabel Wray organised a cake sale on July 25th at her work place and made fabulous Brazilian cocktails as well. She also used the occasion to explain about Hypoparathyroidism and had our leaflets to hand - saves telling everyone one by one!

Isabel and her colleagues raised £210 for Hypopara UK as well raising awareness and having a great time celebrating her forthcoming wedding. Congratulations and thanks, Isabel!





Garage sale

Hypopara UK member David Coates struck on the great idea of selling unwanted items on ebay after clearing out his loft and garage and raised £90. Thank you, David!


Leap of love - Mum skydives for baby son with HPTH 

On 12th May, brave Scottish mother Lorraine Mathers jumped out of a plane from 10,000 feet to raise funds for HPTH UK. Spurring her on was the thought of her one year old son Reece who has hypoparathyroidism. Joining Lorraine was Reece's aunts Michelle Roberts and Claire Clarke and his uncle, Thomas Muir, a real family affair! They also organised two family fun nights, raising a fantastic total of £1000. Well done, Lorraine and family!

Missed the day? Don't worry - you can still sponsor Lorraine and her family on our Bmcharity page here




Liam Sale is newly married to Claire (our Admin Officer) who was left with  Hypoparathyroidism following surgery for thyroid cancer. Liam is proving his love and support for his wife by running the London Marathon on 17th April to help raise funds and awareness about Claire's plight. Remember - this could happen to you or those you love too.  We hope you will come and cheer him on! To read his story and to donate please visit our Bmycharity page




Ben Lomond Climb

A massive thank you to Natalie Love who climbed Ben Lomond in three and a half hours and came down again in two! Newly married, Natalie was diagnosed with autoimmune polyglandular hypoparathyroidism when she was six. She was in hospital with high calcium the week before the climb but undeterred, she carried on with her plan to raise funds and awareness about HPTH. Please give her your support and donate on our Bmcharity page.



Wirral Coastal Walk

Huge thanks to Hannah  Knott, 17, who finished the walk for us in 6 hours, despite a pulled muscle. She was spurred on by the thought of her friend, Hannah Mullen (on left) the organiser and Hypoparathyroidism patient who was in hospital unable to take part. Get well soon, Hannah M! Our Bmcharity page is still open for donations.



Star fundraiser Bridget O’Connor organised a fantastic hoedown at her local community centre for HPTH UK and BTF.  Her family  helped her serve country style food, organise the music, and call the dances. There was a raffle, quiz and colouring competition for the kids. A fun night was had by all and they raised around £300. Well done, Bridget!


Children's book for sale!

 HPTH UK  committee member Bridget O'Connor has written a children‟s book called 'Hisham's Envelope' for children being diagnosed with long term conditions and facing blood tests. Illustrated, with notes for parents & carers,a list of useful websites, and well  recieved by families at Sure Start Nottingham, this book will positively reassure parents and provide the opportunity for lots of questions and discussion.  Sales have already reached £450 and proceeds are to be shared between HPTH UK and BTF. To read more and to buy a copy please click here




In the summer of 2009 two wonderful women, Clare Earps (an HPTH patient herself) and Gayle Scott, took up the challenge and ran 10k each in Leeds and Manchester, raising £400. THANK YOU BOTH!!!




Royal Parks Half Marathon

We took part in the first ever Royal Parks Marathon, also our first major event, in October 08 and raised nearly £2000 thanks to the stalwart efforts of two great guys, Jack Gardener and Dan Lloyd, and your very generous sponsorship. Thank you to everyone who donated! 

It was a fantastic event made even more special by all the members and frineds and family who turned up to the HPTH UK picnic we held in Hyde Park afterwards. Imagine our surprise to see Jessy Clays and Judith Taylor all the way from Europe! It was an emotional event, being the very first time that any HPTH UK members had ever met.

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