Add your story
Living with Hypopara
To mark World Hypoparathyroidism Awareness Day on June 1st each year we publish new stories to add to our collection of patient experiences which we have called the 'Living with Hypopara' project.
This project was launched in 2011 to bring together our collected stories and to raise awareness and understanding about what it is really like to live with this challenging and rare condition, and to build a useful resource for doctors, researchers, patients and families.
To read the stories please click here
We now also collect the experiences of members with primary hyperparathyroidism which are currently available in our newsletters.
If you would like to help raise awareness about your particular type of hypoparathyroidism, or hyperparathyroidism you can find out how to add your story here:
How to add your story
If you would like to tell us about your experience and what it has meant to your life there are 2 ways to add your story to the collection:
Here are a few questions to help you get started:
Thank you for helping us to raise awareness about parathyroid conditions