Welcome to Hypopara UK
Empowering, educating & supporting patients since 2005
We warmly welcome you to the UK & Ireland patient organisation for adults & children living with a parathyroid disorder. If you have any type of rare hypoparathyroidism, psuedohypoparathyroidism, caSR or the more common primary hyperparathyroidism we're here to help you to understand your condition and improve your quality of life. Read more about how we help here and join us here to access our support group. We look forward to meeting you.
Order your Hypopara UK Christmas cards here
1) Choose from a range of 30 designs
Invitation to take part in a new survey
Do you have hypoparathyroidism that you feel is uncontrolled by calcium & vitamin D treatment?
Do you regularly help or support someone with hypoparathyroidism?
If you are either of these people please take part in this short online survey which aims to understand how hypoparathyroidism impacts your life and how you cope with it on a daily basis.
Please click here to read more (members only)
Video on latest stem cell research
Watch the excellent video that consultant surgeon Sebastain Aspniall and his team at Newcastle University have made to explain parathyroid stem cell research and why it is needed.
21st November 2017
Shire 'quality of life' report out now
We are delighted to bring you the results of the 'Living with Chronic Hypoparathyroidism' survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from 'the impact the condition has on patients' ability to lead a normal life - to work, drive and socialise - to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.'