What details do we collect?
We collect your name and email address primarily. Depending on your activity we may also have your telephone number and postal address. If you have chosen to fill in the questions on registration (not compulsory) then we may also have basic medical details as well, such as the type of condition you have and when you were diagnosed.
How and why do we collect your details?
Hypopara UK collects personal data from you in a number of different ways:
How do we store these details?
All data is held in a secure environment and treated with the utmost respect. Any information is kept on secure, password-protected computers using a fully encrypted server with access limited to executive staff members and webmaster only. We also use a variety of well regulated platforms including Mail Chimp (contact email list), Pay Pal (banking, donations and merchandise), and BTMyDonate (fundraising and donations). Written notes from telephone helpline calls are destroyed or kept securely until the case is closed.
Lawful Basis of Processing
Hypopara UK will only process your information if we have a lawful basis to do so. There are 6 lawful basis of processing as set out in data protection laws and we use the following:
When you register online as a member of Hypopara UK you are accepting the terms of membership stated in the registration agreement. This sets out that we will use your email address to send you membership information. If you would rather not receive these emails you may at any time unsubscribe to receiving information from Hypopara UK by sending an email to Liz Glenister via the address on the Contact page.
Any medical information you provide is done so with your consent. Hypopara UK will never pass this information on to anyone else (e.g. a doctor) without your express consent.
How to contact us about your details
If you change your contact details, please send an email with your new details to Mandy Mainland via the address on the Contact page
You have the right to access information that Hypopara UK holds about you. If you wish to see the details we hold or would like us to delete any information from our records, or if you no longer wish to remain a member of Hypopara UK please contact Liz Glenister via the address on the Contact page or telephone 01342 316315. Alternatively, you may write to us at Hypopara UK, 6 The Meads, East Grinstead, West Sussex, RH19 4DF. We will act as quickly as we can to help.
22nd May 2018