Video on latest stem cell research
We are excited to show you this excellent video about the groundbreaking research on parathyroid stem cells being carried out at Newcastle University by Sebastian Aspinall and his team. Surgeon Mr Aspinall describes hypopara and Hypopara UK member Gillian Casson talks about her own experience of living with the condition. Dr Annette Meesan and Kamilla Mahkamova explain the scientific process. Click here to watch the video
21st November 2017
UK 'Quality of life' report out
We are delighted to bring you the results of the 'Living with Chronic Hypoparathyroidism' survey which was conducted by Shire, in collaboration with Hypopara UK, on patients with this rare condition.
The report sets out for the first time the extent of the hypopara patient experience in the UK. Findings describe daily challenges ranging from 'the impact the condition has on patients' ability to lead a normal life - to work, drive and socialise - to the frequency with which their condition causes them to make an unplanned stay in hospital, or a trip to A&E.'
This new report was met with much interest at the recent SfE BES 2017 conference and we hope it will help lead to greater understanding about the challenges that patients face and which so urgently need addressing.
12th November 2017