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Patient Stories

We  collect  patients' stories to help raise awareness about the challenges and triumphs of living with different types of hypoparathyroidism, and hyperparathyroidism. These were the first stories about hypoparathyroidism ever to be published anywhere. 

 

Hypoparathyroidism

These stories cover all types of hypoparathyroidism - post surgical, genetic, autoimmune and  idiopathic.

 

Pregnancy and breastfeeding with hypoparathyroidism

The first ever accounts collected from women with hypoparathyroidism about their pregnancy and breast feeding experiences.

 

Vincent's Story

Baby Vincent was 6 weeks old when he was found to have a genetic form of hypoparathyroidism caused by a calcium receptor mutation of which there are over 300 types. Vincent's type is the second only reported case in the world.

 

Primary Hyperparathyroidism

Not yet on the website butyou can read those we have already published in our newsletters. 

 

Add your story

If you would like to add your story to our collection please click here


   
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